Just keeping to myself today.
It’s going to be a tough 3 weeks until I can get my tax return back and that’s hinging on there actually being money to come back.
I need to brainstorm some cheap meals to save on money.
I also got into a massive fight last night with someone and I think my trust in them have broken as well but it’s making me feel really off today and I feel really down today.
Bottom_racer@aussie.zone 3 weeks ago
Big day today.
Ol’ girl is going back home after her 3.5 week stay in hospital. Was only supposed to be 3-5 days.
After seeing her everyday, all I can say is that she really shouldn’t be (not in my control). Seeing her last night shook me a bit. Basically she’s been refusing 1/2+ the food when there and also refusing supplements (like ensure, resource etc).
Problem is after her head strike a year ago she had a TBI which has caused what they call non amnestic MCI which is a fancy way of saying impaired mind but memory still there. Problem is the only way to slow it down is food and excersise, both of which are not going to be easy.
So taking off work for a bit heading over to p’s to see if this will work. I’m not fazed by doing most of the stuff for them (cooking / cleaning / washing etc), really doesn’t take much time. Ol’ boy will get a cleaner in probably soon.
What I’m mainly worried about is that shift in personality over the last 3 weeks.
For example last night she asked me to turn the light down because she wanted to watch TV. So I did. She said ‘that’s great’, goes around to the other side of the bed and snaps at me ‘why is it so dark in here!’. That is not her.
I’m hoping getting some food in her after basically being on a hunger strike will ease that sort of thing up, but if it doesn’t then we’re in for a ride.
Guess we’ll find out.
Thank you all reading this stuff. Not exactly light and airy.
TheWitchofThornbury@aussie.zone 3 weeks ago
Feels. You got this, for the moment. Look after yourself too.
personal experience
Hate to say this, but I think it’s time you and your Dad got together and worked out a strategy for further cognitive decline management. You just can’t give up work to do the basic care stuff - that’s a non-continuing proposition even though it works well to look at in the short term. I’m talking trigger points for when more care is needed, and strategies to cope. And what happens if your Dad or you gets sick etc. Really really need to be on the same page. Yes this will be embarrassing to discuss. And some of the options will sound pretty cold and clinical but need to be considered. There’s professional help available for counselling/discussing this sort of thing, and using that might help your Dad and rest of fam take this seriously enough to be useful. Hospitals/doctors/clinics have contact info - and you may need an official letter from your mum’s doctor to access it. I found myself doing what I thought would be short term care for my mum, and found out that the rest of my family thought I was doing it all so they didn’t have to, and this went on for months and months. This got old very very fast and I had to really put my foot down to come up with a more equitable arrangement. Some family members still haven’t forgiven me. One sibling’s spouse is still snarked that she was asked to participate (minimally) and that was more than 10 years ago. Eventually Mum had to go into full time residential care and she HATED it. But there was no other viable option that permitted the rest of the family to have some kind of a life. End of life can be very distressing to all when its long drawn out and there’s no possibility of major improvement and a return to full independence. Just saying.
Bottom_racer@aussie.zone 3 weeks ago
Thankyou so much for your personal experience. Really appreciate that advice. i think I’ll get the ball rolling on that fairly soon.
melbaboutown@aussie.zone 3 weeks ago
This.
I was in a very similar position except I didn’t have any say around making alternative arrangements.
Eagle@aussie.zone 3 weeks ago
You are such a good egg. Healing takes time and a whole lot of resources, so having you there is going to give her the best chance of an effective recovery.
Ensure and the like have an artificial taste that a lot of people can’t tolerate. There used to be a flavourless supplement, I’ll have a sticky beak and see if it’s still around. There’s two main things; cook what she likes/feels like, and making sure every mouthful is as calorie dense as you can make it while she still likes it. You’re doing good work there, and it’s so so tough. We are all here as a resource and a safe venting place.
Bottom_racer@aussie.zone 3 weeks ago
Really good advice, thankyou. Definitely going to try to make every mouthful count.
StudChud@aussie.zone 3 weeks ago
You are always welcome always to vent and just get it all out here!
It isn’t light or airy, no, but it doesn’t have to be. This is what is happening in your life and to you, and it is worth talking to people you trust - even if it’s just this forum 💜 I get the pain of watching your mum deteriorate, even though my experiences cause was different, and it isn’t easy to look after them. The chores are easy, the mental energy and internal stress it takes to just be present and witness to it is draining. I’m so sorry you and your mum and dad are going through this right now, I hope your mum is able to settle down now she is back home and will accept food. Sending you all my love and good vibes, if I could give you some of my mental energy I would do that too 💜💜💜
Bottom_racer@aussie.zone 3 weeks ago
Big thanks.
I think the mental energy and stress will slowly catch up. Guess we’ll see if I’m cut out for this (I have my doubts eek).
PeelerSheila@aussie.zone 3 weeks ago
I hope things improve for her. Maybe now she’s at home her eating will improve? My mum mostly hated hospital food and ate better when I was cooking. It’s a hard time you’re going through and we’re always here when you need to vent 🫂
Bottom_racer@aussie.zone 3 weeks ago
Thankyou. I’m really hoping it’s the same thing that happens here
melbaboutown@aussie.zone 3 weeks ago
I’m sorry to hear :(
I wonder if some kind of home support package might come in a bit sooner. But also I know there are many things not in your control and post-release care isn’t always great
Bottom_racer@aussie.zone 3 weeks ago
Thankyou. Definitely looking at home support packages. Definitely looking at the speech path, physio and OT stuff.
imoldgreeeg@aussie.zone 3 weeks ago
Oh this is tough. You are doing good. And vent away. Hoping things improve when she gets home
Bottom_racer@aussie.zone 3 weeks ago
Thanks :) Hoping so too.
Gibsonhasafluffybutt@aussie.zone 3 weeks ago
Hey man I’m sorry that you and your family are going through such a hard time. I hope everything calms down soon ❤️
Bottom_racer@aussie.zone 3 weeks ago
Thanks dude me too :)
anotherspringchicken@aussie.zone 3 weeks ago
Hopefully your mum feels better being at home, and starts to eat more there. Take care of yourself, too