get a little white board and eraser
play board games, play cards
can you go on drives?
and waiting is horrible, horrible for him too,
also, respite care so your mum can have a few hours to herself, organise thru the hospital
Comment on Daily discussion thread: š Wednesday, April 24, 2024
RustyRaven@aussie.zone āØ11ā© āØmonthsā© agoI have been spending more time with them, but Dad canāt do anything now, he canāt really speak and is basically just sitting in his armchair with the TV on 24/7. Itās not a very pleasant environment unfortunately. Iād love to be able to take Mum out to get away from it for a bit but she doesnāt want to leave him alone for any length of time. Weāve pretty much all said our goodbyes because he could go at any time and now we are all just waiting.
Seagoon_@aussie.zone āØ11ā© āØmonthsā© ago
RustyRaven@aussie.zone āØ11ā© āØmonthsā© ago
Heās not really able to do anything. He can still get to the toilet and back but the effort leaves him struggling to breathe. Itās pretty horrible really and Iām pretty sure he would have preferred to go a month or more ago.
Iāve been pretty disappointed in the lack of help thatās being given. The palliative care team are providing thickened liquids and loaned a wheelchair but there is no real support. They ask him if heās fine, he lies and they just accept it. Mum would prefer him to be in care because she is constantly stressed and not physically able to assist him if he has problems but they just keep pushing for him to stay at home. Itās hard to try and push for anything like respite care because Iām not the caregiver so donāt have any standing and Mumās not particularly assertive. Itās just a really shitty situation all round. ā¹ļø
Eagle@aussie.zone āØ11ā© āØmonthsā© ago
Can you ask that he be admitted to a palliative care unit for some respite? Itās a hard period to go through, especially if heās not accepting of services.
RustyRaven@aussie.zone āØ11ā© āØmonthsā© ago
I just had another chat with Mum about this. They technically can admit him to a palliative unit for respite, but they donāt actually have any places available. Dadās also refused to have assistance with showering etc. in the home. Itās a frustrating situation, especially as we really donāt know how long it is going to go on for. If itās only another week then itās not worth the effort of pushing to organise something, but if It goes on another month or more then it would be. A crystal ball would be very helpful at this point.
TinyBreak@aussie.zone āØ11ā© āØmonthsā© ago
Can you read to him? share some stories of good memories when you were growing up?
I just. I think we should all be so lucky to pass surrounded by love.
RustyRaven@aussie.zone āØ11ā© āØmonthsā© ago
Unfortunately we really donāt have that sort of relationship. He has never really shared stories or anything with us and in many ways I barely know him. I guess he has taken being part of the āsilent generationā to heart.