Comment on Daily discussion thread: 🍃 Wednesday, April 24, 2024

• RustyRaven@aussie.zone ⁨6⁩ ⁨months⁩ ago

  I have been spending more time with them, but Dad can’t do anything now, he can’t really speak and is basically just sitting in his armchair with the TV on 24/7. It’s not a very pleasant environment unfortunately. I’d love to be able to take Mum out to get away from it for a bit but she doesn’t want to leave him alone for any length of time. We’ve pretty much all said our goodbyes because he could go at any time and now we are all just waiting.

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  • TinyBreak@aussie.zone ⁨6⁩ ⁨months⁩ ago

    Can you read to him? share some stories of good memories when you were growing up?

    I just. I think we should all be so lucky to pass surrounded by love.

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    • RustyRaven@aussie.zone ⁨6⁩ ⁨months⁩ ago

      Unfortunately we really don’t have that sort of relationship. He has never really shared stories or anything with us and in many ways I barely know him. I guess he has taken being part of the “silent generation” to heart.

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  • Seagoon_@aussie.zone ⁨6⁩ ⁨months⁩ ago

    get a little white board and eraser

    play board games, play cards

    can you go on drives?

    and waiting is horrible, horrible for him too,

    also, respite care so your mum can have a few hours to herself, organise thru the hospital

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    • RustyRaven@aussie.zone ⁨6⁩ ⁨months⁩ ago

      He’s not really able to do anything. He can still get to the toilet and back but the effort leaves him struggling to breathe. It’s pretty horrible really and I’m pretty sure he would have preferred to go a month or more ago.

      I’ve been pretty disappointed in the lack of help that’s being given. The palliative care team are providing thickened liquids and loaned a wheelchair but there is no real support. They ask him if he’s fine, he lies and they just accept it. Mum would prefer him to be in care because she is constantly stressed and not physically able to assist him if he has problems but they just keep pushing for him to stay at home. It’s hard to try and push for anything like respite care because I’m not the caregiver so don’t have any standing and Mum’s not particularly assertive. It’s just a really shitty situation all round. ☹️

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      • Eagle@aussie.zone ⁨6⁩ ⁨months⁩ ago

        Can you ask that he be admitted to a palliative care unit for some respite? It’s a hard period to go through, especially if he’s not accepting of services.

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• Seagoon_@aussie.zone ⁨6⁩ ⁨months⁩ ago

  agree, spend time :)

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