Physics Girl Long Covid and ME/CFS Livestream [Fundraiser + Interviews]

Comments

• mecfs@lemmy.world ⁨10⁩ ⁨months⁩ ago

  100k reached! Thanks to everyone who donated for putting hope into our lives ❤️

  source
• SaltyLemon66@sh.itjust.works ⁨10⁩ ⁨months⁩ ago

  is there a coming from this? if not it would probably be time for assisted dying.

  source

  • mecfs@lemmy.world ⁨10⁩ ⁨months⁩ ago

    ME/CFS has a 5% recovery rate. I am as severe as Diana for a decade for example.

    Please don’t say things like that. It insinuates that our lives are not worth living, when that choice is very personal, and having someone else say that can be very heartbreaking when you’re just living the best you can.

    source

    • Ghostalmedia@lemmy.world ⁨10⁩ ⁨months⁩ ago

      Apologies for the jerks in this thread. I’m yanking those comments now since that behavior is against community rules.

      As the downvotes indicate, these people are not a representation of the rest of this community’s views.

      source

      • -> View More Comments
    • kemsat@lemmy.world ⁨10⁩ ⁨months⁩ ago

      [deleted]

      source

      • -> View More Comments
  • jol@discuss.tchncs.de ⁨10⁩ ⁨months⁩ ago

    People seem to slowly get better, and there are still medical trials going on for different medicine that has varying levels of effect. A friend was on a trial for a sort of heart disease medicine that has graduated to the next phase.

    I can’t imagine the stress on both their lives, specially in a country with terrible healthcare like America.

    source

    • douglasg14b@lemmy.world ⁨10⁩ ⁨months⁩ ago

      I can’t imagine the stress on both their lives, specially in a country with terrible healthcare like America.

      Should be a slogan.

      source
• PagPag@lemmy.world ⁨10⁩ ⁨months⁩ ago

  Just no.

  source

  • mecfs@lemmy.world ⁨10⁩ ⁨months⁩ ago

    POV you have absolutely no empathy

    source

    • PagPag@lemmy.world ⁨10⁩ ⁨months⁩ ago

      Just no.

      source

      • -> View More Comments
  • CaptainPedantic@lemmy.world ⁨10⁩ ⁨months⁩ ago

    Buddy, I just shit your pants.

    source

    • PagPag@lemmy.world ⁨10⁩ ⁨months⁩ ago

      Lmao

      source
  • Daxtron2@startrek.website ⁨10⁩ ⁨months⁩ ago

    I hope you experience chronic illness one day

    source

    • jol@discuss.tchncs.de ⁨10⁩ ⁨months⁩ ago

      They have chronic stupidity. Unfortunately the main symptoms are only felt by those around them.

      source
    • Drewelite@lemmynsfw.com ⁨10⁩ ⁨months⁩ ago

      Wouldn’t wish that on anyone. I hope Diana gets better and no one ever has to deal with chronic fatigue syndrome.

      source
• dingus@lemmy.world ⁨10⁩ ⁨months⁩ ago

  I hope this is not inappropriate for me to say, but in currently in the process of trying to get over COVID and this is scaring me.

  source
• TheFonz@lemmy.world ⁨10⁩ ⁨months⁩ ago

  Is. This a scam??

  source

  • Ghostalmedia@lemmy.world ⁨10⁩ ⁨months⁩ ago

    It is not.

    source

    • TheFonz@lemmy.world ⁨10⁩ ⁨months⁩ ago

      Ok. I just wasn’t sure. I guess there’s always an element of risk involved in these things.

      source

      • -> View More Comments