Comment on Daily discussion thread: šŸƒ Wednesday, April 24, 2024

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RustyRaven@aussie.zone āØ6ā© āØmonthsā© ago

Heā€™s not really able to do anything. He can still get to the toilet and back but the effort leaves him struggling to breathe. Itā€™s pretty horrible really and Iā€™m pretty sure he would have preferred to go a month or more ago.

Iā€™ve been pretty disappointed in the lack of help thatā€™s being given. The palliative care team are providing thickened liquids and loaned a wheelchair but there is no real support. They ask him if heā€™s fine, he lies and they just accept it. Mum would prefer him to be in care because she is constantly stressed and not physically able to assist him if he has problems but they just keep pushing for him to stay at home. Itā€™s hard to try and push for anything like respite care because Iā€™m not the caregiver so donā€™t have any standing and Mumā€™s not particularly assertive. Itā€™s just a really shitty situation all round. ā˜¹ļø

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