So many hugs, you are not alone. 😘😘😘
if it would help I could come over and help you around the house if you like. Because I know that worries you. 😘
Comment on Discussion Thread 🛸 Friday 16 May 2025
melbaboutown@aussie.zone 2 weeks ago
Oh jeez… today has not been a good day. It’s only getting worse.
For those playing at home I have gastroparesis secondary to h-EDS and it’s also caused enough involuntary weight loss that I don’t have enough of an internal fat pad to stop a ligament pinching the vein to my kidney. I’m in constant pain, mostly bed bound and vomiting because I’m unable to even digest crackers. Completely liquid diet might be back on the cards. My team is going to go back to pushing for a feeding tube but drs resist until it’s the last resort so who knows if they’ll intervene.
So many hugs, you are not alone. 😘😘😘
if it would help I could come over and help you around the house if you like. Because I know that worries you. 😘
It’s ok, thanks for the offer but I’m good! I’m just complaining.
I’m so sorry you are going through this. I hope things improve with the diet, fingers crossed for you. Medical decisions are always a minefield of risk vs benefit and it’s so hard to know what to do sometimes. Sending you warm wishes and hoping you can find something to distract yourself from the mental worry.
Yeah, I had my hopes up but seeing more stuff about how it isn’t necessarily an effective solution :/
Cheers, I just have to do the best I can.
SpinMeAround@aussie.zone 2 weeks ago
Sending you so much love and warmth, Melba. Hope your team fights hard for you!
melbaboutown@aussie.zone 2 weeks ago
Thanks. I’m sick of it and just want to feel better