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Comment on Discussion Thread 📺 Monday 21 July 2025

Bottom_racer@aussie.zone ⁨2⁩ ⁨months⁩ ago

everyday ask her opinion about other things

We do. That’s one of the harder things with this non-amnestic MCI. She remembers everything, has her opinions, remembers what’s happening currently in the news. There’s an aloofness there that is difficult to overcome when in conversation.

The eating issues relate to a series of mouth ops in the past and now poor decision making about what she can (or will) eat. Only thing that slows that MCI business is eating and exercise. It’s basically compounding. Other thing with the MCI stuff is stress and anxiety. Ol’ boy and I are stressed about not enough food, makes her stressed, makes things worse. If ol’ boy and I aren’t banging on about food, she eats less which further… It’s fucked.

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melbaboutown@aussie.zone ⁨2⁩ ⁨months⁩ ago
Would snacks like tea and biscuits be palatable? Egg custard? Creamy soups?

(Sorry if this is unsolicited advice. I seem to be giving a lot of it lately)

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- Bottom_racer@aussie.zone ⁨2⁩ ⁨months⁩ ago
  I’ll take any advice atm so please don’t say sorry I’m thankful for everyone here chiming in. She’s had so much of it from so many doctors. Was resetting her medicare app the other day and it’s just insane how many appts she’s had.
  
  Creamy soups seems to be the only thing atm.
  
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  - Thornburywitch@aussie.zone ⁨2⁩ ⁨months⁩ ago
    Maybe try mango slices, avocado slices - things that slide down easily and don’t need much chewing but still have plenty of nutrition.
    
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  - melbaboutown@aussie.zone ⁨2⁩ ⁨months⁩ ago
    That’s good. I’ve really been sticking my oar in lately.
    
    Broccoli and cheese soup might be a winner? Can you put protein powder in? I found a thing thegeriatricdietitian.com/high-calorie-soups/
    
    A soup cup with a sipping hole might make it easier than a bowl too, to hold in her hand and take an occasional mouthful.
    
    I’d also be delicately enquiring about any nausea, bowel troubles or quickly feeling full. Gastroparesis can happen after surgery and she could try pro kinetics if the doctor thinks it’s safe.
    
    Does she have a dietician or a gastroenterologist? It’s unfair if you’ve been left to manage this mostly yourself.
    
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    Bottom_racer@aussie.zone ⁨2⁩ ⁨months⁩ ago
    Oh missed this reply sorry.
    
    The thermos thing is a really good idea. I’m going to try that. Thank you.
    
    Thankfully asking about nausea / bowel things is pretty standard.
    
    Quickly feeling full is a struggle. To my mind with how little she’s eating it happens very quickly.
    
    I think one of the problems is just how many people she’s seeing. Problem is they don’t all speak to each other.
    
    Ol’ boy is the one managing it on a macro level, but I’m trying to get everything to fit together day to day as it’s a bit chaotic.
    
    For example, w/ her eye pressure meds (this is to prevent total blindness), can only take a few of them with food, but they interact w/ each other so you have to space them out. When you have random food refusal… it’s just super difficult to get it into a schedule. It’s a bit frustrating lol.
    
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