Comment on Discussion Thread 📺 Monday 21 July 2025
Bottom_racer@aussie.zone 1 month agoShe does, so i cook it, then she can’t eat it or if she can she’s no where eating near enough of it. I think of something else and she doesn’t want it because she didn’t ask for it.
I really needed her to not refuse supplements as that’s the safety net.
I meant her long term wants or is she just living in the now ? It seems to me she just wants to assert herself , have some way of having say so in her life, and eating and not eating is one way she can do that.
Maybe a way out of that is everyday ask her opinion about other things, that way she might be less defiant about food.
everyday ask her opinion about other things
We do. That’s one of the harder things with this non-amnestic MCI. She remembers everything, has her opinions, remembers what’s happening currently in the news. There’s an aloofness there that is difficult to overcome when in conversation.
The eating issues relate to a series of mouth ops in the past and now poor decision making about what she can (or will) eat. Only thing that slows that MCI business is eating and exercise. It’s basically compounding. Other thing with the MCI stuff is stress and anxiety. Ol’ boy and I are stressed about not enough food, makes her stressed, makes things worse. If ol’ boy and I aren’t banging on about food, she eats less which further… It’s fucked.
Would snacks like tea and biscuits be palatable? Egg custard? Creamy soups?
(Sorry if this is unsolicited advice. I seem to be giving a lot of it lately)
I’ll take any advice atm so please don’t say sorry I’m thankful for everyone here chiming in. She’s had so much of it from so many doctors. Was resetting her medicare app the other day and it’s just insane how many appts she’s had.
Creamy soups seems to be the only thing atm.
melbaboutown@aussie.zone 1 month ago
Are there any appetite stimulants (ie medication) that might work? Or is it something else?
I’m sorry you and she are going through this
Bottom_racer@aussie.zone 1 month ago
There are but it’s another layer of drugs that I’m not sure she’ll be receptive to. I think the main problem is her mouth and pain. She has a bunch of mouth numbing things but… refusal… grr.
melbaboutown@aussie.zone 1 month ago
Oh that explains it. A temporary nasogastric tube is an option that’s less scary or permanent than the abdominal route